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Key Neonatal Resource - Observation

Base FHIR Definition here. : “Measurements and simple assertions made about a patient, device or other subject.“

Generic Observation resource to capture all key measurements recorded during a neonatal care episode.

FHIR Profile details here (Simplifier)

Key elements required

  • code : Expecting a single SNOMED Code for this observation item. The SNOMED codes listed below will have added relevance to the BadgerNet Record and also national data collection requirements.

  • effective[x]: Single date+time or period

  • value[x] : The value of the observation

  • performer

  • note - optional added free text.

  • component: added component codes if applicable to the respective observation code.

  • (extension) PaediatricEpisodeTimePoint - optional code to record when this item is related in the care episode.

Observation

XML Import Schema Attribute

SNOMED Code(s)

BadgerNet item

Final outcome

  • NNAP

717661000000106

NNU Discharge Details Form:

image-20241210-094935.png

Observation code: 717661000000106 - Outcome (record artefact)

Code options with mapping:

276506001 | Neonatal death (event) → DIED

There are other Neonatal Death SMOMED Codes

264362003 | Home (environment) → HOME

225746001 | Ward (environment) → WARD

261665006 | Unknown (qualifier value) → UNKNOWN

Core temperature

  • NNAP

FirstTemperatureMeasuredAfterAdmission

FirstTempMeasuredTime

FirstTemperatureNotRecordable

AdmitTemperature

386725007

or

LOINC = 8310-5

NNU Admission form:

image-20241204-135805.png

386725007 - Body temperature (observable entity)

Use Neonatal Episode TimePoint = atAdmission

Profiled resource definition

Breastmilk Feeding

  • NNAP

EnteralFeed

229912004

NNU Daily Summary Form:

image-20241204-140525.png

1..n list of option codes, as follows:

"Nil by mouth" - 182923009

"Suckling at the breast" - 1104211000000107

"Mother's fresh expressed breast milk" - 226790003

"Mother's frozen expressed breast milk" - CREATE BADGERNET CODE (no SNOMED found to match)

"Donor expressed breast milk" - 819974004

"Breast milk fortifier" - 1163382003 (confirm/discuss)

"Formula" - 386127005

Discussion with parents

  • NNAP

ConsultationWithParents

ConsultationWithParentsDateTime

223469001

NNU Admission details form:

image-20241212-092727.png

223469001 - Discussion about activity (procedure)

Use observation.Performer as a reference to a PractitionerRole which it intern has a Code which is one of: http://hl7.org/fhir/r4/valueset-practitioner-role.html

DISCUSSION RQD Confirm use of ROLE and which role codes could define “senior member of staff”.

Tracheostomy care

  • NCCMDS

Tracheostomy

TracheostomyCaredForBy

385858000

or

302108003

NNU Daily Summary form - Resporiatory tab:

image-20250106-104138.png

Use Observation..Value[x] (codeable concept) to set “acute” or “Chronic”:

255251009 | Acute phase (qualifier value)

278177007 | Chronic phase (qualifier value)

If no added code provided, then “acute” will be assumed.

For this Observation it is assumed that it is done by a nurse. If Observation.Performer is the snomed code 72705000 (parent), then it will be assumed that the tracheostomy is not performed by a nurse.

Chest drain present

  • BAPM/HRG

  • NCCMDS

DayChestDrain

258643002

NNU Daily Summary form - Respiratory tab:

image-20250106-153337.png

258643002 | Chest drain (physical object)

Replogle tube present

  • BAPM/HRG

ReplogleTube

257371004

NNU Daily Summary form - Respiratory tab:

image-20250106-153612.png

257371004 | Replogle tube (physical object)

Gastroschisis silo present

  • BAPM/HRG

GastroschisisSilo

718879001

NNU Daily Summary form - Gastrointestinal

image-20250106-153841.png

718879001 | Gastroschisis silo bag (physical object)

External ventricular drain present

  • BAPM/HRG

ExternalVentricularDrain

153008441000119109

NNU Daily Summary form - Neurology tab:

image-20250106-163247.png

153008441000119109 | Intracranial ventricular fluid external drainage catheter in situ (finding)

Ventricular tap present

  • NCCMDS

VentricularTap

230869001

NNU Daily Summary form - Neurological tab:

image-20250106-164114.png

230869001 | External drainage procedure from ventricle of brain (procedure)

CLINCAL CONFIRMATION RQD

Stoma in situ

  • NCCMDS

  • BAPM/HRG

StomaInSitu

302112009

or

302111002

NNU Daily Summary form - Gastrointestinal tab:

image-20250106-171012.png

302112009 | Colostomy present (finding)

or

302111002 | Ileostomy present (finding)

Weight during stay

  • BAPM / HRG

DayWeight

27113001

NNU Daily Summary form - General tab

image-20250108-095615.png

Also, in admission form:

image-20250108-095752.png

27113001 | Body weight (observable entity).

Send this resource any and every time the baby’s weight is recorded.

Use Paediatric Episode Timepoint extension to distinguish between birth, admission, during-stay, and discharge.

Abdominal Silo in situ

  • NCCMDS

GastroschisisSilo

718879001

NNU Daily Summary form - Gastrointestinal tab:

image-20250109-094010.png

718879001 | Gastroschisis silo bag (physical object)

Respiratory Support

  • NNAP

  • HRG & Care Levels

  • NCCMDS

RespiratorySupport

371820004

47545007

Daily Summary Form: Respiratory tab:

image-20241203-110247.png

371820004 (Patient Ventilated) --> "VENTILATED"

47545007 (CPAP) --> "CPAP"

image-20241209-103235.png
CODE
"headbox|14",
                "nclt1|15",
                "ncge1|16",
                "flow|17",
                "o2unspecified|18"

REQUIRES GROUP DISCUSSION FOR CODING

57485005 | Oxygen therapy (procedure)

794131000000104 | Oxygen nasal cannula in situ (finding)

467645007 | Continuous positive airway pressure nasal oxygen cannula (physical object)

image-20241209-103258.png

REQUIRES GROUP DISCUSSION FOR CODING

BIPAP - 243142003 Dual pressure spontaneous ventilation support (regime/therapy)

SIPAP - Nothing found for SIPAP

Nasal ventilation - 229312009 Nasal ventilation therapy (regime/therapy)

High flow o2 - 426854004 - Heated and humidified high flow oxygen therapy using nasal cannula (procedure)

Nasopharyngeal airway in situ

  • BAPM / HRG

NasopharyngealAirway

61330002

871568008

From NNU Daily Summary form - Respiratory tab:

image-20250130-102517.png

61330002 | Nasopharyngeal airway device (physical object)

or

871568008 | Nasopharyngeal airway stent (physical object)

Parenteral nutrition

  • BAPM / HRG

  • NCCMDS

ParenteralNutrition

225372007

From NNU Daily Summary form - Fluids and Feeding tab:

image-20250130-112249.png

225372007 | Total parenteral nutrition (regime/therapy)

Feeding Method

  • BAPM / HRG

  • NCCMDS

MethodFeeding

169740003

value options:

1297276008

40043006

1104231000000104

229914003

229913009

229917005

310244003

61420007

From NNU Daily Summary form - Fluids and Feeding tab:

image-20250203-141312.png

Code to use: 169740003 | Infant feeding method (observable entity)

Codes of interest set in the observation.value[x] (as a SNOMED code):

1297276008 | Breast milk feeding (regime/therapy)

40043006 | Bottle feeding of patient (regime/therapy)

1104231000000104 | Feeder cup feeding (regime/therapy)

229914003 | Nasogastric feeding (regime/therapy)

229913009 | Orogastric feeding (regime/therapy)

229917005 | Gastrostomy feeding (regime/therapy)

310244003 | Nasojejunal feeding (regime/therapy)

"Transanastomotic" - NO CODE FOUND TBC

Also…

61420007 | Tube feeding of patient (regime/therapy)

…for “Tube fed for any part of day” value.

Lines in situ

  • BAPM / HRG

  • NCCMDS

LineInSituToday

838424007

1268296006

1268297002

398176008

52124006

838423001

From NNU Daily Summary form - Lines in situ tab:

image-20250203-145241.png

Single observation resource required for each option. Note: we are ignoring “Subcutaneous” option (for now), as it is used very rarely.

838424007 | Peripheral artery cannula (physical object

1268296006 | Umbilical arterial catheter (physical object)

1268297002 | Umbilical venous catheter (physical object)

398176008 | Peripherally inserted central catheter (physical object).  (links to Percutaneous central venous line (long line))

52124006 | Central venous catheter, device (physical object) (links to Surgically Inserted CVL)

838423001 | Peripheral venous cannula (physical object)

Epidural Catheter in situ

  • BAPM . HRG

  • NCCMDS

EpiduralCatheter

30610008

NNU Daily Summary form - Neurology tab:

image-20250108-105556.png

30610008 | Epidural catheter, device (physical object) 

Urinary catheter in situ

  • BAPM/HRG

  • NCCMDS

UrinaryCatheter

20568009

or

737944006

or

23973005

NNU Daily Summary form - Renal tab:

image-20250108-103419.png

20568009 | Urinary catheter, device (physical object)

or

737944006 | Care of urinary catheter (regime/therapy)

or

23973005 | Indwelling urinary catheter, device (physical object)

Surgery today

  • BAPM / HRG

MajorSurgeryToday

394539006

or

387713003

NNU Daily Summary form - Diagnosis, Procedures, and Drugs tab:

image-20250207-100932.png

394539006 | Pediatric surgery (qualifier value)

387713003 | Surgical procedure (procedure)

Note: This can also be set if ANY PROCEDURE resource is given where procedure.category is set to “surgical procedure”

Immunoglobulins today

  • NCCMDS

997001000000108

NNU Daily Summary form - Metabolic/Jaundice tab:

image-20250207-104106.png

997001000000108 | Immunoglobulins (observable entity)

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