Draft - Dataset - UKNEONATALSUMMARY

GA_Birth

LIVE

Gestation at birth

Observation-BNet-Child-BirthGestation.Value

Birth_weight

LIVE

Birth weight

Observation-BNet-Child-BirthWeight.Value

PaediatricEpisodeType

NOT AVAIL. (RFC)

Paediatric episode type

EpisodeOfCare-BNet-Child-PaediatricEpisode.type

PaediatricEpisodeStart

NOT AVAIL. (RFC)

Paediatric episode start

EpisodeOfCare-BNet-Child-PaediatricEpisode.period.start

PaediatricEpisodeEnd

NOT AVAIL. (RFC)

Paediatric episode end

EpisodeOfCare-BNet-Child-PaediatricEpisode.period.end

PaediatricEpisodeLocation

NOT AVAIL. (RFC)

Paediatric episode location

EpisodeOfCare-BNet-Child-PaediatricEpisode.managingOrganization

Child.NationalID

LIVE

Child/Neonatal natioanl ID

Patient-BNet-Child.identifier.coding.code

Child.LocalHospitalID

Local hospital ID

FHIR Resource for this item TBD

Child.Surname

LIVE

Surname

Patient-BNet-Child.name.family

Child.Forename

LIVE

Forename

Patient-BNet-Child.name.given

Child.DOB

LIVE

Date of birth

Patient-BNet-Child.birthDate

Child.Sex

LIVE

Gender at birth

Patient-BNet-Child.gender

Child.POB

Place of birth

FHIR Resource for this item TBD

Child.BirthHeadCircumference

LIVE

Head circumference at birth

observation-HeadCircumference.Value

Child.GestationAtBirth

LIVE

Gestation at birth

Observation-BNet-Child-BirthGestation.Value

Child.Birthweight

LIVE

Weight at birth

Observation-BNet-Child-BirthWeight.Value

Child.BirthLength

LIVE

Length at birth

Observation-bodyheight.Value

NNPartner.DOB

IN DEV - COMING SOON

Partner Date of Birth

RelatedPerson-BNet-FatherPartner.birthDate

NNPartner.NamePrefix

IN DEV - COMING SOON

Partner Name Prefix

RelatedPerson-BNet-FatherPartner.name.prefix

NNPartner.Forename

IN DEV - COMING SOON

Partner First Name

RelatedPerson-BNet-FatherPartner.name.given

NNPartner.Surname

IN DEV - COMING SOON

Partner Last Name

RelatedPerson-BNet-FatherPartner.name.family

NNPartner.NameUse

IN DEV - COMING SOON

Partner Name Usage

RelatedPerson-BNet-FatherPartner.name.use

NNPartner.address.street

IN DEV - COMING SOON

Partner Street Address

RelatedPerson-BNet-FatherPartner.address.line

NNPartner.address.city

IN DEV - COMING SOON

Partner City

RelatedPerson-BNet-FatherPartner.address.city

NNPartner.address.postCode

IN DEV - COMING SOON

Partner Postcode

RelatedPerson-BNet-FatherPartner.address.postCode

NNPartner.Language

IN DEV - COMING SOON

Partner Language

RelatedPerson-BNet-FatherPartner.communication.language

NNPartner.TelecomHome

IN DEV - COMING SOON

Partner Home Phone

RelatedPerson-BNet-FatherPartner.Telecom.Home

NNPartner.TelecomWork

IN DEV - COMING SOON

Partner Work Phone

RelatedPerson-BNet-FatherPartner.Telecom.Work

NNPartner.TelecomMobile

IN DEV - COMING SOON

Partner Mobile Phone

RelatedPerson-BNet-FatherPartner.Telecom.Mobile

NNPartner.TelecomEmail

IN DEV - COMING SOON

Partner Email

RelatedPerson-BNet-FatherPartner.Telecom.Email

NNPartner.extension(Partner-ethnicity)

IN DEV - COMING SOON

Partner Ethnicity

RelatedPerson-BNet-FatherPartner.extension:patientEthnicity

NNMother.NID

IN DEV - COMING SOON

Mother National ID

Patient-BNet-Mother.identifier.coding.code

NNMother.HID

IN DEV - COMING SOON

Mother Hospital ID

Patient-BNet-Mother.identifier.coding.code

NNMother.DOB

IN DEV - COMING SOON

Mother Date of Birth

Patient-BNet-Mother.birthDate

NNMother.NamePrefix

IN DEV - COMING SOON

Mother Name Prefix

Patient-BNet-Mother.name.prefix

NNMother.Forename

IN DEV - COMING SOON

Mother First Name

Patient-BNet-Mother.name.given

NNMother.Surname

IN DEV - COMING SOON

Mother Last Name

Patient-BNet-Mother.name.family

NNMother.NameUse

IN DEV - COMING SOON

Mother Name Usage

Patient-BNet-Mother.name.use

NNMother.address.street

IN DEV - COMING SOON

Mother Street Address

Patient-BNet-Mother.address.line

NNMother.address.city

IN DEV - COMING SOON

Mother City

Patient-BNet-Mother.address.city

NNMother.address.postCode

IN DEV - COMING SOON

Mother Postcode

Patient-BNet-Mother.address.postCode

NNMother.Language

IN DEV - COMING SOON

Mother Language

Patient-BNet-Mother.communication.language

NNMother.TelecomHome

IN DEV - COMING SOON

Mother Home Phone

Patient-BNet-Mother.Telecom.Home

NNMother.TelecomWork

IN DEV - COMING SOON

Mother Work Phone

Patient-BNet-Mother.Telecom.Work

NNMother.TelecomMobile

IN DEV - COMING SOON

Mother Mobile Phone

Patient-BNet-Mother.Telecom.Mobile

NNMother.TelecomEmail

IN DEV - COMING SOON

Mother Email

Patient-BNet-Mother.Telecom.Email

ChildCongenitalMalformations

LIVE

Congenital malformations at birth

Observation-BNet-Child-CongenitalMalformations.Value

GA_Birth

LIVE

Gestation at birth

Observation-BNet-Child-BirthGestation.Value

Birth_weight

LIVE

Birth weight

Observation-BNet-Child-BirthWeight.Value

Birth_Length

Length at birth

FHIR Resource for this item TBD

EpisodicBadgerId

LIVE

Episodic anonymous BadgerID for all BadgerNet single episodes of care

EpisodeOfCare-BNet-Child-PaediatricEpisode.identifier[use='secondary'].value

LocalHospitalId

LIVE

Local hospital ID for single episode of care

EpisodeOfCare-BNet-Child-PaediatricEpisode.identifier[use='official'].value

PaediatricEpisodeType

NOT AVAIL. (RFC)

Paediatric episode type

EpisodeOfCare-BNet-Child-PaediatricEpisode.type

PaediatricEpisodeStart

NOT AVAIL. (RFC)

Paediatric episode start

EpisodeOfCare-BNet-Child-PaediatricEpisode.period.start

PaediatricEpisodeEnd

NOT AVAIL. (RFC)

Paediatric episode end

EpisodeOfCare-BNet-Child-PaediatricEpisode.period.end

PaediatricEpisodeLocation

NOT AVAIL. (RFC)

Paediatric episode location

EpisodeOfCare-BNet-Child-PaediatricEpisode.managingOrganization

Child.FinalOutcome

IN DEV - COMING SOON

Overall result of neonatal care at discharge or transfer.

Observation-BNet-Child-NNObservations.code

Child.CoreTemperature

IN DEV - COMING SOON

Core temperature of neonate.

Observation-BNet-Child-NNObservations.code

Child.BreastmilkFeeding

IN DEV - COMING SOON

Administration of expressed breast milk or direct breastfeeding.

Observation-BNet-Child-NNObservations.code

Child.DiscussionWithParents

IN DEV - COMING SOON

Documented communication with parents about care plan.

Observation-BNet-Child-NNObservations.code

Child.RespiratorySupport

IN DEV - COMING SOON

Assistance to maintain ventilation and oxygenation.

Observation-BNet-Child-NNObservations.code

Child.CordClamping

IN DEV - COMING SOON

Applying a clamp to the umbilical cord after birth to stop blood flow.

Procedure-BNet-Child-NNProcedures.code

Child.RopScreening

IN DEV - COMING SOON

Eye exam for Retinopathy of Prematurity.

Procedure-BNet-Child-NNProcedures.code

Child.CranialUltrasound

IN DEV - COMING SOON

Ultrasound to assess neonatal brain structures.

Procedure-BNet-Child-NNProcedures.code

Child.WardRound/ClincalReview

IN DEV - COMING SOON

A scheduled review of the infant’s condition and care plan by the neonatal team.

Procedure-BNet-Child-NNProcedures.code

Child.RopScreening

IN DEV - COMING SOON

Eye exam for Retinopathy of Prematurity.

Procedure-BNet-Child-NNProcedures.code

Child.PretermBrainInjury(Ivh)

IN DEV - COMING SOON

Intraventricular haemorrhage in preterm infants.

Condition-BNet-Child-NNConditions.code

Child.DrugsGiven

IN DEV - COMING SOON

General administration of medications.

MedicationAdministration-BNet-Child-NNMedication.medicationCodeableConcept

Child.BloodstreamInfection

Bloodstream infection

FHIR Resource for this item TBD

Child.NecrotisingEnterocolitis

Necrotising enterocolitis.

FHIR Resource for this item TBD

Child.TracheostomyCare

IN DEV - COMING SOON

Tracheostomy tube in place.

Observation-BNet-Child-NNObservations.code

Child.ChestDrainPresent

IN DEV - COMING SOON

Thoracic drain in place.

Observation-BNet-Child-NNObservations.code

Child.VentricularTapPresent

IN DEV - COMING SOON

Procedure or device for aspirating cerebrospinal fluid from ventricle in place.

Observation-BNet-Child-NNObservations.code

Child.StomaInSitu

IN DEV - COMING SOON

Opening on abdominal wall for diversion in place.

Observation-BNet-Child-NNObservations.code

Child.AbdominalSiloInSitu

IN DEV - COMING SOON

Device in place for staged closure of abdominal wall defects.

Observation-BNet-Child-NNObservations.code

Child.RespiratorySupport

IN DEV - COMING SOON

Assistance to maintain ventilation and oxygenation.

Observation-BNet-Child-NNObservations.code

Child.ParenteralNutrition

IN DEV - COMING SOON

The administration of nutrients directly into the bloodstream via an intravenous route.

Observation-BNet-Child-NNObservations.code

Child.FeedingMethod

IN DEV - COMING SOON

Approach used for nutrition delivery.

Observation-BNet-Child-NNObservations.code

Child.LinesInSitu

IN DEV - COMING SOON

Presence of vascular access devices.

Observation-BNet-Child-NNObservations.code

Child.EpiduralCatheterInSitu

IN DEV - COMING SOON

Catheter in place in epidural space

Observation-BNet-Child-NNObservations.code

Child.UrinaryCatheterInSitu

IN DEV - COMING SOON

Catheter in place inserted into bladder for urine drainage.

Observation-BNet-Child-NNObservations.code

Child.ImmunoglobulinsToday

IN DEV - COMING SOON

Administration of immunoglobulin therapy during current day.

Observation-BNet-Child-NNObservations.code

Child.ExchangeTransfusion

IN DEV - COMING SOON

Procedure where infant’s blood is replaced with donor blood.

Procedure-BNet-Child-NNProcedures.code

Child.PeritonealDialysis

IN DEV - COMING SOON

Renal replacement therapy using dialysate in peritoneal cavity.

Procedure-BNet-Child-NNProcedures.code

Child.RopScreening

IN DEV - COMING SOON

Eye exam for Retinopathy of Prematurity.

Procedure-BNet-Child-NNProcedures.code

Child.ExchangeTransfusion

IN DEV - COMING SOON

Procedure where infant’s blood is replaced with donor blood.

Procedure-BNet-Child-NNProcedures.code

Child.IntravenousBloodProducts

IN DEV - COMING SOON

Administration of blood components via IV.

Procedure-BNet-Child-NNProcedures.code

Child.PeritonealDialysis

IN DEV - COMING SOON

Renal replacement therapy using dialysate in peritoneal cavity.

Procedure-BNet-Child-NNProcedures.code

Child.Haemofiltration

IN DEV - COMING SOON

Continuous renal replacement therapy filtering blood.

Procedure-BNet-Child-NNProcedures.code

Child.BarrierNursed

IN DEV - COMING SOON

Isolation nursing using protective measures.

Procedure-BNet-Child-NNProcedures.code

Child.Phototherapy

IN DEV - COMING SOON

Treatment for neonatal jaundice using special light.

Procedure-BNet-Child-NNProcedures.code

Child.Cooling

IN DEV - COMING SOON

Therapeutic hypothermia for suspected brain injury.

Procedure-BNet-Child-NNProcedures.code

Child.RopScreening

IN DEV - COMING SOON

Eye exam for Retinopathy of Prematurity.

Procedure-BNet-Child-NNProcedures.code

Child.Convulsions

IN DEV - COMING SOON

Seizure activity in neonates.

Condition-BNet-Child-NNConditions.code

Child.NeonatalAbstinenceSyndrome

IN DEV - COMING SOON

Withdrawal symptoms in newborns exposed to drugs in utero.

Condition-BNet-Child-NNConditions.code

Child.RecurrentApnoea

IN DEV - COMING SOON

Repeated episodes of cessation of breathing.

Condition-BNet-Child-NNConditions.code

Child.ContinuousInfusionOfInotrope

IN DEV - COMING SOON

Administration of drugs to support cardiac output.

MedicationAdministration-BNet-Child-NNMedication.medicationCodeableConcept

Child.ContinuousInfusionOfInsulin

IN DEV - COMING SOON

IV insulin administration.

MedicationAdministration-BNet-Child-NNMedication.medicationCodeableConcept

Child.DrugsGiven

IN DEV - COMING SOON

General administration of medications.

MedicationAdministration-BNet-Child-NNMedication.medicationCodeableConcept

Child.IntravenousMedication

IN DEV - COMING SOON

Medication given via IV route.

MedicationAdministration-BNet-Child-NNMedication.medicationCodeableConcept

Child.ChestDrainPresent

IN DEV - COMING SOON

Thoracic drain in place.

Observation-BNet-Child-NNObservations.code

Child.ReplogleTubePresent

IN DEV - COMING SOON

Replogle tube in place for continuous suction and decompression.

Observation-BNet-Child-NNObservations.code

Child.GastroschisisSiloPresent

IN DEV - COMING SOON

Temporary silo bag in place.

Observation-BNet-Child-NNObservations.code

Child.ExternalVentricularDrainPresent

IN DEV - COMING SOON

Catheter system draining cerebrospinal fluid externally from ventricles in place.

Observation-BNet-Child-NNObservations.code

Child.StomaInSitu

IN DEV - COMING SOON

Opening on abdominal wall for diversion in place.

Observation-BNet-Child-NNObservations.code

Child.WeightDuringStay

IN DEV - COMING SOON

Recorded measurements of infant’s weight during episode of care.

Observation-BNet-Child-NNObservations.code

Child.RespiratorySupport

IN DEV - COMING SOON

Assistance to maintain ventilation and oxygenation.

Observation-BNet-Child-NNObservations.code

Child.NasopharyngealAirwayInSitu

IN DEV - COMING SOON

Tube in place through nostril into nasopharynx to maintain airway.

Observation-BNet-Child-NNObservations.code

Child.ParenteralNutrition

IN DEV - COMING SOON

The administration of nutrients directly into the bloodstream via an intravenous route.

Observation-BNet-Child-NNObservations.code

Child.FeedingMethod

IN DEV - COMING SOON

Approach used for nutrition delivery.

Observation-BNet-Child-NNObservations.code

Child.LinesInSitu

IN DEV - COMING SOON

Presence of vascular access devices.

Observation-BNet-Child-NNObservations.code

Child.EpiduralCatheterInSitu

IN DEV - COMING SOON

Catheter in place in epidural space

Observation-BNet-Child-NNObservations.code

Child.UrinaryCatheterInSitu

IN DEV - COMING SOON

Catheter in place inserted into bladder for urine drainage.

Observation-BNet-Child-NNObservations.code

Child.SurgeryToday

IN DEV - COMING SOON

Infant underwent surgical procedure on current date.

Observation-BNet-Child-NNObservations.code

Child.ExchangeTransfusion

IN DEV - COMING SOON

Procedure where infant’s blood is replaced with donor blood.

Procedure-BNet-Child-NNProcedures.code

Child.PeritonealDialysis

IN DEV - COMING SOON

Renal replacement therapy using dialysate in peritoneal cavity.

Procedure-BNet-Child-NNProcedures.code

Child.RopScreening

IN DEV - COMING SOON

Eye exam for Retinopathy of Prematurity.

Procedure-BNet-Child-NNProcedures.code

Child.ExchangeTransfusion

IN DEV - COMING SOON

Procedure where infant’s blood is replaced with donor blood.

Procedure-BNet-Child-NNProcedures.code

Child.PeritonealDialysis

IN DEV - COMING SOON

Renal replacement therapy using dialysate in peritoneal cavity.

Procedure-BNet-Child-NNProcedures.code

Child.BarrierNursed

IN DEV - COMING SOON

Isolation nursing using protective measures.

Procedure-BNet-Child-NNProcedures.code

Child.Phototherapy

IN DEV - COMING SOON

Treatment for neonatal jaundice using special light.

Procedure-BNet-Child-NNProcedures.code

Child.CfamMonitoring

IN DEV - COMING SOON

Cerebral Function Analysing Monitor for brain activity.

Procedure-BNet-Child-NNProcedures.code

Child.Cooling

IN DEV - COMING SOON

Therapeutic hypothermia for suspected brain injury.

Procedure-BNet-Child-NNProcedures.code

Child.AnySurgery

IN DEV - COMING SOON

Indicates infant underwent any surgical procedure.

Procedure-BNet-Child-NNProcedures.code

Child.RopTreatment/Surgery

IN DEV - COMING SOON

Intervention for retinopathy of prematurity.

Procedure-BNet-Child-NNProcedures.code

Child.RopScreening

IN DEV - COMING SOON

Eye exam for Retinopathy of Prematurity.

Procedure-BNet-Child-NNProcedures.code

Child.NeonatalAbstinenceSyndrome

IN DEV - COMING SOON

Withdrawal symptoms in newborns exposed to drugs in utero.

Condition-BNet-Child-NNConditions.code

Child.OesophagealAtresia

IN DEV - COMING SOON

Congenital absence or closure of the oesophagus.

Condition-BNet-Child-NNConditions.code

Child.ProstaglandinInfusionOrInotropeOrVasodilatorGiven

IN DEV - COMING SOON

Infusion of prostaglandin or related drugs.

MedicationAdministration-BNet-Child-NNMedication.medicationCodeableConcept

Child.DrugsGiven

IN DEV - COMING SOON

General administration of medications.

MedicationAdministration-BNet-Child-NNMedication.medicationCodeableConcept

Child.IvDrugsGiven

IN DEV - COMING SOON

Drugs administered intravenously.

MedicationAdministration-BNet-Child-NNMedication.medicationCodeableConcept

Child.Prostaglandin

IN DEV - COMING SOON

Prostaglandin administered to child

MedicationAdministration-BNet-Child-NNMedication.medicationCodeableConcept